Today we switch gears and talk about Autism. I have a fabulous guest lined up, whom I think many of you know already. Please give a big welcome to Heather from Acting Balanced.
He was diagnosed in the ‘moderate to high’ category. According to the PhD he is 26 months and is at a 13-15 month development level on most categories. Though I am still not sure what they can actually tell at this age. I look at this as a baseline and we will know more in probably three or so years. He does not talk yet and he does indeed have social issues that are quite obvious (even in my denial stage beforehand – I recognized it).
I am really looking forward to when he talks. My ten year old is adopted (we are her uncle and aunt) so I am looking forward to being called ‘Daddy’ for the first time. While I know it will happen someday, but what happens if it does not (and yes, logically I know if does not change a single thing)? I know this sounds selfish of me – but I really do want to hear it one day.
I am also looking forward to trying to figure out how to stop the head banging when he gets frustrated. It is very disconcerting and I really do not want him to hurt himself. I can understand why he does it. If I could understand a lot of what is going on around me but I could not find a way to communicate what I need and feel back – I’d be banging my head against the wall too. Seeing the frustration in his eyes is just heart wrenching.
It is strange but this is the first time since I knew officially that I have been really upset by it. I guess the holidays were all about having fun and being together. The reality of being back to work and having to call insurance companies etc. has brought the reality to me I guess.
The real issue is that I think about how nothing in life is going to be easy for him and it makes me sad. I am having a hard time reconciling myself with the issue as a result. I love my boy and want to do what is right for him. I have been told several times to just keep doing what I am doing. That I am doing the right things. I guess it is the powerlessness that I am feeling that really hurts. I just wish I could wave my magic wand and make things all better (like a kiss to the boo boo) but I know that is not going to happen. “
This summer, Liam’s dad and I worked daily on his alphabet, counting, colors and shapes, as well as name recognition and the like…
And yesterday we got the pay-off
He got his report card from the first 4 weeks of school – Liam has demonstrated to the teacher that he knows his alphabet, counts to 10 regularly and knows his name in print, is starting to pre-write for her and is making huge strides in language usage for her…
He’s still hanging back at school though – at home he’s counting to 20, writing his name and recognizing 3 and 4 letter words when his dad or I write them on his magna-doodle… but we’re breaking down that communication barrier – I honestly think he may read before he speaks in sentences – but we’ve unlocked another piece of the puzzle and he loves showing off his new skills!